GAAPP · UDAY
Shared Decision-Making Tool #TakeBackControl #UDAY

Chronic Urticaria & Angioedema: your voice in the treatment conversation

A guided worksheet to help you track your hives and swelling, understand how urticaria is affecting your life, and walk into your next appointment ready to make treatment decisions together with your clinician — not for them.

If you ever have swelling of the tongue, throat tightness, difficulty breathing or swallowing, dizziness, or fainting, this may be a sign of a severe angioedema or anaphylaxis emergency. If you think this is anaphylaxis, use your prescribed adrenaline auto-injector if you have one and call 999 for an ambulance. This tool is for tracking and conversation preparation only — it does not replace urgent medical care.

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About chronic urticaria and angioedema

Chronic urticaria (CU) is the recurrence of itchy hives (wheals), angioedema (deeper swelling), or both, on most days for six weeks or longer. It's grouped into chronic spontaneous urticaria (CSU), which has no identifiable trigger, and chronic inducible urticaria (CIndU), brought on by a specific physical trigger such as cold, pressure, heat, or exercise. Many people live with a mix of both.

2 yrs
Diagnosis is often delayed by up to two years from first symptoms, leaving many people without an explanation for what's happening to their skin.
>50%
More than half of people with CSU remain symptomatic despite standard or high-dose antihistamine treatment.
Tens of millions
CSU is estimated to affect tens of millions of people worldwide at any given time, with wide-ranging effects on sleep, work, and emotional health.

Where treatment stands today

Current international guidance (EAACI/GA²LEN and related consensus updates) recommends a stepped approach: starting with a standard-dose second-generation antihistamine, then updosing up to four times the standard dose if hives persist, before moving to add-on therapy. For years, omalizumab (an anti-IgE biologic) and cyclosporine were the main third-line options. Since 2025, that landscape has widened: the FDA approved remibrutinib, the first oral BTK-inhibitor for CSU, as a needle-free option for people who remain symptomatic on antihistamines, and trial data on dupilumab continues to build. A 2025 treatment comparison found omalizumab and remibrutinib to be among the most effective options for antihistamine-refractory disease, while dupilumab also reduces hive activity, with less evidence so far specific to angioedema. This is exactly the kind of decision — daily pill vs. injection, speed of relief vs. long-term data, side-effect trade-offs — where your priorities should help guide the choice.

01

Track this week's symptoms

Fill this in daily, ideally at the same time each evening, thinking back over the last 24 hours. This mirrors the UAS7 (Urticaria Activity Score over 7 days), the tool clinicians use most often to measure hive activity, plus a simplified angioedema tracker.

Hive activity (UAS7)

DayNumber of wheals (hives)Itch severity
Wheals: 0 none · 1 mild (<20) · 2 moderate (20–50) · 3 intense (>50) Itch: 0 none · 1 mild · 2 moderate (annoying, not disruptive) · 3 intense (disrupts activity/sleep)
UAS7 total (0–42)
0
No activity

Angioedema tracker (simplified)

A quick daily check for swelling episodes. This is a simplified adaptation for self-tracking — it is not the full validated Angioedema Activity Score (AAS), which your clinician may also use.

DayAngioedema severity
Weekly angioedema score (0–21)
0
No episodes
02

How is it affecting your life?

Urticaria's impact reaches far beyond skin. Rate each area for the past week — this helps your clinician see the whole picture, not just the wheal count.

03

Your treatment history

Check everything you've tried and how it went. This creates a clear record so you and your clinician aren't retrying — or unnecessarily avoiding — options.

04

What matters most to you

Treatment decisions in chronic urticaria almost always involve trade-offs. Use the arrows to rank these from most (1) to least important to you right now. There's no wrong order — it's about naming what matters to you.

    05

    Questions to bring to your appointment

    Tap a suggestion to add it, or write your own. A short, specific list is more useful in a 15-minute visit than a long one.

    06

    Your summary to share

    This pulls together everything above into one page. Print it, save it as a PDF, or read it out loud at the start of your visit.

    Shared Decision-Making Summary

    This week's hive activity (UAS7)

    Total score (0–42)0 — No activity

    This week's angioedema

    Total score (0–21)0 — No episodes

    Life impact this week

    Treatments tried

    Top 3 priorities

    Questions for my clinician

    What "better" looks like to me

    Not yet answered.
    Progress saved on this device